Parents' Needs and Their Perceived Obstacles With Team Members in Perinatal Palliative Care: A Qualitative Phenomenological Study

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Özet

Advances in prenatal diagnosis have made medical, psychological, and ethical issues regarding the diagnosis of fetal anomalies a crucial topic of research. This study identified the needs of parents of unborn babies with fetal anomalies and their views regarding the services of interdisciplinary team members in charge of assisting them. The sample consisted of 30 parents and 40 team members from a women's health education and research hospital. Data were collected through face-to-face interviews and were qualitatively analyzed using the phenomenological method of interpretation. The results showed that parents' physical, psychological, social, and spiritual needs during pregnancy, childbirth, and postpartum were not fully met after their unborn babies were diagnosed with fetal anomalies. The results also showed that team members needed a structured program, legal regulations, and training to provide holistic care.

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AlanDeğerDil
dc.contributor.authorYasar, Beril Nisa
dc.contributor.authorTerzioglu, Fusun
dc.date.accessioned2026-10-27T23:47:24.183715557Z
dc.date.available2026-10-27T23:47:24.183715557Z
dc.date.issued2022
dc.description.abstractAdvances in prenatal diagnosis have made medical, psychological, and ethical issues regarding the diagnosis of fetal anomalies a crucial topic of research. This study identified the needs of parents of unborn babies with fetal anomalies and their views regarding the services of interdisciplinary team members in charge of assisting them. The sample consisted of 30 parents and 40 team members from a women's health education and research hospital. Data were collected through face-to-face interviews and were qualitatively analyzed using the phenomenological method of interpretation. The results showed that parents' physical, psychological, social, and spiritual needs during pregnancy, childbirth, and postpartum were not fully met after their unborn babies were diagnosed with fetal anomalies. The results also showed that team members needed a structured program, legal regulations, and training to provide holistic care.
dc.identifier.doi10.1097/njh.0000000000000894
dc.identifier.eissn1539-0705
dc.identifier.endpageE249
dc.identifier.issn1522-2179
dc.identifier.issue6
dc.identifier.pmid35881685
dc.identifier.scopus2-s2.0-85141221016
dc.identifier.startpageE241
dc.identifier.urihttps://rdlopen.rawdatalibrary.net/r/kostu/10311
dc.identifier.volume24
dc.identifier.wosWOS:000872714300001
dc.language.isoen
dc.publisherLippincott Williams and Wilkins
dc.relation.ispartofJournal of Hospice and Palliative Nursing
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.subjectfetal anomaly
dc.subjectinterdisciplinary team members
dc.subjectparental needs
dc.subjectperinatal palliative care
dc.subjectqualitative study
dc.subject.classificationNursing
dc.subject.otherEXPERIENCES
dc.subject.otherPROFESSIONALS
dc.subject.otherDIAGNOSIS
dc.subject.otherDEATH
dc.subject.otherCHILD
dc.titleParents' Needs and Their Perceived Obstacles With Team Members in Perinatal Palliative Care: A Qualitative Phenomenological Study
dc.typeArticle
rdl.citation.openalex2
rdl.citation.scopus2
rdl.citation.wos1
rdl.oa.statusclosed
rdl.scopus.quartileQ1
rdl.sdgSDG03
rdl.source.indexSCOPUS
rdl.source.indexWOS
rdl.wos.indexScience Citation Index Expanded (SCI-EXPANDED)
rdl.wos.indexSocial Science Citation Index (SSCI)